with Jacob Teitelbaum, M.D.
I have been dealing with chemical sensitivity, Epstein Barr and Lymes, and probable mercury toxicity. I recently got a diagnosis of porphyria which may be genetic and/or may be triggered by infections, chemical sensitivity or metals. Don’t know yet what type of porphyria. I was diagnosed in December and a week later I was diagnosed with chlamydia pneumoniae. This infection can produce secondary porphyria. All the practitioners I’ve seen—even the alternative ones—say that the only way to treat the chlamydia pneumoniae is with antibiotics for 6-18 months. I have avoided antibiotics for the last 20 years—except for (1) 10 day course. Also many drugs, including some antibiotics can trigger pophyria attacks. Have you worked with chlamydia pneumoniae, and do you know of herbal, nutritional or homeopathic treatments? Do you know anything about natural treatment for porphyria? I am in bad shape, live in a rural area, and have doctors who do not know anything about porphyria and not much about treating multiple infections. Any advice would be appreciated.
Dr. Teitelbaum’s response:
Because of the associated porphyria, I will need to defer this part of the issue to your local doctor as allopathic medicine does a decent job in dealing with this diagnosis. Given your other problems, it may reasonably be necessary for you to give the antibiotics an extended trial. See my article on antibiotic sensitive infections and fibromyalgia. Treating for candida as discussed on my website (endfatigue.com) also would be helpful.
SHINE represents four areas of health issues that need to be addressed when creating a treatment program. These health issues and their roles in treating CFS/FM are as follows:
S = SLEEP: Get adequate sleep, preferably eight to nine hours a night. Sleep replenishes the body's energy and heals its muscles. Inadequate sleep will leave you exhausted and in pain.
H = HORMONES: Get tested for hormone deficiency and treated if needed. Hormone deficiencies can contribute to fibromyalgia and chronic fatigue syndrome.
I = INFECTIONS: Get treatment when symptoms of infections occur. The lack of restorative sleep in CFS/FM leads to dysfunctional immune systems. Underlying viral, bacterial, bowel, sinus and yeast infections are common and can be a contributing cause or result of CFS/FM.
N = NUTRITIONAL SUPPLEMENTS: Optimal nutritional supplementation is essential. Many nutrients can be depleted as a result of CFS/FM. B-12, magnesium, Acetyl L Carnitine and glutathione, as well as your basic A, B, C and D vitamins need to be supplemented at a level that your average over the counter multivitamin cannot provide.
E = EXERCISE: Exercise as able. After 10 weeks on the 4 steps above, you will be able to slowly increase your exercise—without being wiped out the next day!
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posted on May 18, 2009 | 2,193 views | tags: CFS, chemical sensitivity, chlamydia pneumoniae, chronic fatigue syndrome, Epstein Barr virus, fibromyalgia, FMS, lyme disease, mercury poisoning, porphyria



























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