I totally agree about staying away from the negative and limiting energy on many of the groups. I used to belong to over 40 yahoogroups but now cut it down to about a quarter of that, and I no longer get the email digests.



When I first got sick with severe MCS, all I could find online was the prognosis that I would get progressively worse until I had to live in a porcelain trailer in the middle of the desert. My situation is certainly close to that now (!) but it is a choice that I embrace in order to live in peace and heal, rather than a lack of choice.



The constructs I love to look at are around health. A friend once told me that there is no such thing as the immune system, and that other systems of healing did not have a term for that. I loved being pushed to look at those things that we never questioned because they became invisible to us.



I’m too tired right now to think of more. I hope others will join the discussion and give us some more food for thought!



Julie

I just read about that group today too! I found it so inspiring and I really appreciated the hot air balloon metaphor (and I just had a dream of one last night! love synchronicity).

I really appreciated what you shared about PTSD and UNexpressed energy. That resonated with me deeply as a person with PTSD.

To share a bit about the things you asked about:

The most limiting construct in my life was the idea that “No one gets better from MCS”
That idea is commonly accepted as objective truth in support groups and for a number of years, I believe it actually prevented me from healing despite all of the healing things I was doing (avoidance, supplements etc etc).
2 years ago I had a big shift and believed it really was possible for some people to heal from MCS (based on my knowing some who have).
Almost immediately, I began to improve. I feel that my buying into that “no one can get better” paradigm was preventing my body from getting benefit from the good things I was doing.
When I let go of that belief system, suddenly I was free and my body seemed to leap at the chance to begin healing!

How did I overcome my belief in that paradigm? Part of it was avoiding groups where it was not accepted that some do heal. Which meant most groups. Part of it was through doing EFT/tapping. A really important part was how I spoke. I began to talk about “when I get better…” instead of “if I ever get better”.
I believe language is really powerful.
When explaining my situation to people, I try whenever possible to describe symptoms instead of giving myself a label of MCS. For example I’ll say, “I can have severe reactions to chemicals…” instead of “I have a condition called MCS…”
I feel that’s really important. My identity was very caught up in MCS. Therefore, on an energetic level, it could be much harder to let go of and heal.
Another really major thing which I feel is particular to illnesses that aren’t totally accepted yet is that part of me felt that if I got better, then those idiots who said it was all in my head/psychosomatic might somehow feel they were right.
So I had to do healing and EFT around that.

Geez! I’m babbling on and on. Your post really inspired me and pulled me in – what a great thing!
I may end up recycling my reply here as part of a post on my blog. I don’t write much :-)

Thank you for sharing and I’d love to hear about anything you’ve deconstructed too and how it has helped!