Comments on: Shoemaker Biotoxin Illness Protocol

By: Sue

Sue — Mon, 19 Mar 2012 02:43:18 +0000

Hi Julie and everyone,

I use to come to this site a few years ago. I have/had Lyme disease. I think my story is up here somewhere. Anyway, I was on antibiotics for years and a lot of supplements, chelation, liquid silver, awful vitamin C (ack, I think it almost killed me)….I was on so much for so long I can’t remember it all.

I have gotten better and worse again and I am pretty convinced at this point that it is the biotoxins that are causing the repeat and chronic problems. And I have realized in the last few months that mold contributes….it’s so insidious.

I just want to add what I know about Shoemaker. My husband is sick, too. He saw Dr. S in January (2012) and started on the CSM. He (Mike, my husband) is seeing improvement. It is really encouraging. He use to get wicked headaches and they are much better. There is improvement in so many areas…..I think we both have hope for the first time in years and years. So I am waiting for my appt.

I have another friend who has seen Dr. S and has improved maybe 50%, after about 3 months. I’d take that!

Negatives I’ve noticed so far. Shoemaker is incredibly busy….he testifies for patients and I think he is in court a lot, as well as seeing patients, writing, etc. I think there are only 3 people total working in his office. So Mike and I have found the individual attn. is lacking. Questions may not be answered for a long time. He also may not be the warm and fuzziest guy…..but I truly think he cares. A lot. There are things that aren’t perfect, but I am going and I believe it is going to help.

Sorry this is so lengthy!
Sue

By: Herbert

Herbert — Sat, 21 Jan 2012 21:13:54 +0000

I just read with great interest you post that specified HLA DRB DBQ instead of the HLA DR. Well, bummer. I just plunked down $240 for the HAL DR and would like to know how you discovered that the other was needed. I got the same info from Dr. Shoemaker’s site and also Dr Kruse’s blog.I self-treat and this is a big hit moneywise, not to mention time! Sorry for your arduous lab/doc journey. I am just really starting to go for the Shoemaker protocol but keep reading bad things about how to manage it. I believe in the basics, but getting a smooth ride seems to be elusive.

I found Shoemaker thru a blog by Dr. Jack Kruse and it has fundamentally changed my strategy on finding true health. Big words, I know. But I have been searching all my life for how a Human operates, how foods/drugs affect the body, and finally, how we can use our spiritual nature to be in balance. Many questions are getting revealed. Please, check it out and see what resonates with you.

By: Ida

Ida — Tue, 27 Sep 2011 00:43:24 +0000

I too am extremely mold sensitive. I learned a lot from
Dr. Graham, a Mycologist. I had found that nothing
could get the mold/mycotoxins out of anything, for me.
I bought Sol-u-mel, and two other expensive liquids.
Metal is very difficult to decantaminate as well.
I also fogged with these solutions that helped.
Last year I saw on the web that Cornell, ag. dept. in Israel
as well as other universities used Baking Soda to spray
for powdery mildew and other fugus. It is better than
all the expensive solutions I was given by drs.
The ratio is 2-4 tablespoons of b.s. to one gal. of water.
I sometimes get contaminated from going into a building
with mold and come home and contaminate by place.
I would immediately start getting respiratory problems,
and this back them out. I have a cold water fogger,
from fogmaster. Before I bought it, I used to spritz
with a spray bottle, several times a day. It help as well.

Another thing, I irrigate my sinuses, with very warm salt water and pinch of baking soda. I just snort this solution from a small bowl (one cup water). bending over a sink. For sinus problems, i also use
Heel Sinusin nasal spray and for congestion Dr. Murrays, lung, bronchial, Sinus health tablets, They just melt away the congestion. People with emphysema use them.
An E.I. dr. in L.A. told me about both of them.
Now, I wash my clothes, shower and fog my place with B.S.
It works. If anyone wants to reach me my email is
iegatwood@yahoo.com
About the air purifier. I looked at that website and there’s nothing there about how it works. how much charcoal,
plastic if any. I question their claim of filtering up to 3,000
sq. ft of space.
Dr. Grahams’ office recommended to use prolabs in Fla,for mold tests.
I thought I would share what I’ve ended up helping me
through this 10 yr. journey.
Here’s a good site. Mary is a Bau-Biologist and an e.i.
http://www.marycordaro.com/learn/
She is very well respected for her expertise.
http://www.marycordaro.com/learn/

By: debra

debra — Sun, 23 Jan 2011 03:49:19 +0000

Reading about this protocol just before a new year – thank god. My life is unbearable, living in a car, I have possibly the worst mcs in this country BUT the pain, with a list of viruses as long as your arm this protocol made sense. I didnt even do a lot of research. Just followed from fatigue to fantastic Dr way of taking it. But I noted most people feel a bit better in 2 days to 3 weeks. 3 weeks into it and no change. I feel at rock bottom. I am SO disappointed. I dont know whether to continue. Of course, I realised quickly it had aspartame and other bits of junk in it. I dont seem to be reacting to it but its just more poison. Ive been taking the vitamin C as suggested until I realised it wasnt buffered and I was making myself more acidic. Is anyone better from it? Should I continue?

By: mold survivor

mold survivor — Sat, 21 Aug 2010 17:55:46 +0000

I too have experienced the problem of extreme mold exposure and toxicity. The key to dramatically moving forward was of course to begin an effective healing protocol combined with remediation or cleaning of the mold conditions or mold materials. The next step however was in my case the most important of all. Even though mold materials or building environments were cleaned, it wasn’t enough. Without a process in place to prevent new mold conditions from re-growing, it was very difficult to move forward with my health condition. I was fortunate to be referred to a company based in Michigan called Wright Way Environmental Technologies. http://www.pureairpurewater.com
They do work all over the USA so they were able to help me out in my area as well. I did months of research trying to find a company that was knowledgable in this area of air quality and air sanitization and finally found them. I was amazed at how much time they spent with me just answering questions and helping me to understand the real problem that continued to affect me even after what I thought was a thorough mold cleaning. Because of how bad I had felt, they even provided a portable version of the mold destructing technology that i was able to bring to work in my office and in my car that gave me the relief I was so desparately hoping for. Hope this helps someone else. We all need to be sharing any positive resources as I was so thrilled to get my life back on track and feeling well again from someone sharing with me.

By: earthwalker

earthwalker — Sun, 27 Jun 2010 07:55:06 +0000

The lab I used was Hopkinton Drug in MA. http://www.rxandhealth.com/ It was about 5 years ago. The problem I had is they mislabeled my Rx originally, so when I got the refill I did not question it – I just assumed they had filled it the same as before (without the fillers I had requested be removed). I ended up ingesting a known trigger for me for several days and then having an anaphylactic reaction to fresh coconut. I would not say I don’t recommend them. I would say that if you get a mislabeled Rx because you gave special directions and they forgot to note it on the bottle, then to MAKE SURE that you have them correct it when you re-order. Do not take anything for granted.

By: earthwalker

earthwalker — Sun, 27 Jun 2010 07:47:02 +0000

Debbie B. sorry I just saw your post. I don’t have much experience with antibiotics, sorry I can’t really offer any advice on it. I used cryptolepis, an herbal antibiotic (suggested by herbalist Stephen Buhner for use with Babesia, which I don’t have) from woodlandessence.com both internally as a tincture and also as a nasal spray to try to address a nasal staph infection. I did not retest after treatment so I don’t know if it was effective. This was about 3 years ago. I hope your doctors can help you! Best, Julie

By: jeny

jeny — Sun, 27 Jun 2010 07:16:01 +0000

I believe it was $800 minimum to be seen, when I was looking into it in late ’08. You can call and get the info packet that you’ll have to fill out. But then when you read the packet, you’ll probably see a few reasons why you might want to find another doctor. Please talk to several people who have gone to him and see what you find. I have heard more horror stories and people who were told and believe that they can’t be helped. Most of them were just given CSM or a CSM alternative. You can get that without traveling to MD and spending thousands. Contrast that to what you find from people who see real EI doctors. I just hear from too many people who regret wasting their money with him, and I’m so glad that I heard these things BEFORE going.

By: Martha

Martha — Thu, 24 Jun 2010 23:49:43 +0000

I’m looking for a source of affordable filler-free cholestyramine. My local compounding pharmacy quoted me a price of $200 for a 6-day supply, which is not even remotely within the realm of possibility for my budget. Julie, it sounds like you had a bad experience with your compounder. Do you not recommend them? Are there other options?

Speaking of things I can’t afford — could someone give me a ballpark estimate on how much an initial consultaiton with Dr. Shoemaker, including testing, would be? Thanks.

By: Debbie B.

Debbie B. — Fri, 23 Apr 2010 04:10:53 +0000

Hi Julie. I am SUPER familiar with all that you’ve uncovered about neurotoxins and mold. I work with an amazing Dr in the Pgh area who has introduced me to the protocols of Dr Shoemaker. I have remediated (safely) mold in our house to successfully eliminate it, detoxed my body of toxic levels of mercury and lead, safely removed my amalgam fillings, etc.; along with a “clean” diet and constant journey of the best supplements for my bodytype, I am now left with dealing with a staph bacteria issue. I’m having a hard time deciphering Shoemaker’s protocol for the 3 (?) different antibiotics that are administered (I believe one is called Bactriban.) I did the nasal swab test, sent it to the univ of MD’s lab…but we never had it tested for antibiotic resistance. Do you have any advice Julie? I’m typically against antibiotic use, but I do believe that it is necessary in my case. I have my pro-biotic course all lined up…but I’m so unclear on an antibiotic protocol. BTW, Dr Dan Pompa in Pgh, PA is an amazing wealth of knowledge http://www.pompahealthsolutions.com. He just released his own detox product called CytoCleanse, and it is an absolutely amazing product. I think it will eliminate my use of CSM.