Comments on: Online fundraiser for severe ME/CFS and MCS sufferer

By: earthwalker

earthwalker — Sun, 29 Nov 2009 00:55:52 +0000

Thanks for your comments John and Kasha, but Nicole will probably not see them. If you want to contact her, you’ll need to find her partner’s email in the articles linked to above and write to him directly with your message. Thanks for reaching out – I’m sure Nicole would appreciate it.

By: kasha

kasha — Sun, 29 Nov 2009 00:01:42 +0000

Nicole,

You should move down to Mass to ride out the next two years. There are better resources and there are tons of places like Sojourn everywhere.

There are social services, health benefits, I have a state paid PCA, drug assistance, a section 8 apt.

The hospitals are better too.

Email me if you decide to do this and I will send you medical info.

A CFS sufferer from MA,
Kasha

By: John

John — Sat, 28 Nov 2009 20:04:31 +0000

Hi. As a Chronic Lyme Sufferer for almost 10 years now i feel sorry to hear these tragic stories. I was almost bed ridden myself but after 30 Docs and 7 years i decided to look into Lyme Disease and discovered how Lyme can do so many different things to so many different people.

All my blood test for Lyme were either neg. or borderline Lyme, I was told i had CFS, Fibro among other things. Lyme is the great imitator and most Docs don’t have a clue about it, i asked myself the key question, do you go outdoors a lot or have a pet at home etc. Ticks are everywhere and can bite in places not easy to detect because they go to warm areas of the body.

In the movie UNDER OUR SKIN a slew of people like me are on there telling there story of how many Docs misdiagnosed them. I hope better testing will evolve someday so Lyme can be the first thing ruled out not the last and it hast to be done by a Lyme Literate because main stream Docs are clueless to Borrelia and what it can really do. I wish you all the best as i know how Lyme wiped me out financially and ruined my whole life.