Comments on: Recovered CFS/ME Patient Goes to Washington, D.C.

By: Peter Anastasia

Peter Anastasia — Tue, 19 Jan 2010 19:12:13 +0000

The individual known as “commonsense” sounds EXACTLY like an insurance company rep or lobbyist. These folks are TERRIFIED that myalgic encephalomyelitis ( ME ) gets the medical and scientific recognition it warrants due to the gravity of its severe nature like Mike alludes to in his testimony. Politicians are in the pockets of the insurance companies. As Mike stated, ME was given the lame, silly and condescending name of CFS to trivialize it in the public’s eye so no one would take it seriously. No legitimate disease gets named after a vague symptom such as “fatigue” which is found in just about any illness to varying degrees. The neurological dysfunction of ME is completely downplayed. This is because to take this disease seriously, it would require a mandate on Congress by the public to research and find effective treatments. Congress by nature of the 2 party system, is lazy and inefficient but more importantly bought off by the insurance industry which is a multi-billion dollar money mill based on depriving patients of care. Imagine the insurance pay-outs the insurance companies would be forced to pay for health and disability benefits! This would definitely affect their bottom line, profits and the satisfaction of the stock share holders. The health care industry is a ruthless, profit driven monopoly and juggernaut bent on giving its CEO’s gigantic bonuses and reaping huge profits for stock holders. It has nothing to do with compassion. Corporations actually form the etiology of fascism. Corporatism is synonymous with fascism by its very definition. The person aka “commonsense” is obviously aware of this fact and thus his derisive attack on Mike. As a former medical professional with ME, I could see no holes in Mike’s story. It was fully credible complete with photographic evidence. Well done!
On a more positive note, I would like to ask Mike who specifically was the Ohio doctor that practices this form of neural therapy for those of us that might benefit from his treatments? I have been disabled with ME for 14 years and am frankly fed up with the lack of effective treatments. Do you know if he might have trained by Dr. Dietrich Klinghardt, the German physician that popularized neural therapy in America and trains other health care practitioners? Dr Klinghardt’s web site is: http://www.neuraltherapy.com/ . He is located in the Seattle area but is rather pricey for some of us on SSDI and I am not sure of what successful results he gets with CFS/ME patients.
Thanks, Mike, for your contribution to the ME community.
I grateful that you successfully recovered your health and act as an advocate for those of us less fortunate. Hopefully, the day arrives soon that ME is no more than a distant memory like small pox or leprosy.

By: Superman

Superman — Sun, 10 Jan 2010 19:36:05 +0000

I dont understand how this treatment can help someone with so many long term active infections. Goldstein also used it for many many years in his patients, instead of procaine he used ketamine which is also a sodium channel blocker and NMDA receptor antagonist, but he never really explained how this may affect immune function or how his patients may possibly improve with such an immune system damage from multiple viruses

By: Michael Dessin

Michael Dessin — Tue, 15 Dec 2009 05:35:45 +0000

Just saw the above comments…I’m not 100% by any means but considerably better. Some days I do function near 100%, others 85% or so.

Reversing this disease process is one thing, than healing damage done, needs to take place.

This disease is extremely complex and requires a multi-modality approach. There will never be a pill that cures this horrific disease, although I know people would obviously like that.

By: earthwalker

earthwalker — Sun, 29 Nov 2009 08:35:44 +0000

Thanks for your comments Jess. I don’t think Mike has ever claimed to be 100% cured. He has improved considerably from his near-death condition last year, but still has some neuro symptoms and is continuing treatment so he can recover as much as possible what he lost. Hopefully he will respond here himself and let you know his recovery status.

By: jess marotta-porter

jess marotta-porter — Sun, 29 Nov 2009 01:32:12 +0000

i find it hard to believe youd lie{i believe you as i know how wierd this illness is] why would anyone lie abt this?the only thing hard for me to believe is that you are 100% cured.[though i hope so]

By: jess marotta-porter

jess marotta-porter — Sun, 29 Nov 2009 01:28:16 +0000

thank you for having the bravery to speak up for us[we are not all as sick as you were,thank god,but i believe most of us lead decievingly limited lives.Others do not know what its like,unless they have it to [cross between ms and aids does sound right to me]im hopeful though,thank you

By: jess marotta-porter

jess marotta-porter — Sun, 29 Nov 2009 01:25:17 +0000

thank you mike,it takes great courage to speak publicaly like that,and i for one think its time for some major changes in the cdc,im hopeful about the new discoveries by the whittemore peterson institute,i hope your treatments are studied as well,as they clearly worked for you

By: Michael Dessin

Michael Dessin — Thu, 19 Nov 2009 05:09:52 +0000

Absolutely Julie, stay strong :)

By: Julie Laffifn

Julie Laffifn — Tue, 17 Nov 2009 23:12:47 +0000

Hi Mike, thanks for replying to my question. I heard your doctor is not taking patients but if you ever hear that this changes, I would love to know about it. I live in IL and Ohio is not so far for me to travel. I’ve gone to TX and SC for treatment. Not easy, but not impossible either! I have severe MCS and many, many neuro problems but not the debilitating fatigue except occasionally gratefully. Am just sooooooo reactive to everything and very neurologically impaired from exposures.
warm wishes, julie

By: Michael Dessin

Michael Dessin — Sun, 15 Nov 2009 03:29:51 +0000

Hey Julie, there is a very good piece on neural therapy on this site! Just go to the treatments section.

There are a number of agents that can be used with neural therapy, from Bee venom, homeopathics, anesthesics and more.

It is very difficult finding a physician in the U.S. who do this therapy for neuro-immune disease. Most just do it for pain and cosmetic purpose.

Hoepfully as this therapy catches on in the U.S. more doctors will be willing to go this route.

Mike