Planet Thrive

Comments

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  Denise

  October 24, 2010 at 10:03 am

  Stephen I have a few questions in regards to diagnosing Lyme.

  What type of test do you recommend using to diagnosis Lyme and which Labs offer it? I live in Idaho. Also, do you know of any LLMD’s or health care practitioners that can assist in treating me in the West.

  I’ve had the Elisa test done and it came back negative. I went to a lab in Pocatello, Idaho, that looked at my blood under a microscope and according to them I have Lyme. I then proceeded to do their all natural protocol and I felt worse rather then better. They then told me that my case was too complex and they couldn’t help me.

  Now I’m at the point of wondering if I have Lyme or not and what to do.

  What do you recommend to getting an accurate test result and moving on to treating?

  Any info you could give me would be greatly appreciated. My symptoms are neurological.

  Denise
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  earthwalker

  October 25, 2010 at 10:01 am

  Hi Denise,
  To submit a question to Stephen, please use the purple “submit a question” in the upper right corner of this page, just below his photo. Stephen does not read and respond to comments left on his column posts. We will be taking a break from the column as of November, so you have about a week to get your question in. All my best, Julie
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  debra parker

  October 31, 2010 at 9:17 pm

  HELP! IM DESPERATE….. this is not a life, its hell all day long, the longest, most agonising death you can imagine, every day, for decades, Im in crisis all day every day, running for my life, severely allergic, dirt, grass, trees – severe reaction, very bad mcs so if anybody comes anywhere near me severe body pain, become very weak, often fall down, knives in my stomach, immediate migraine, one small exposure affects me for hours/days, cant go into shops, buildings, peoples homes or cars. My home made me so sick I abandoned that years ago. Diagnosed with chronic fatigue syndrome, went to a support group meeting and passed out. I cant go near people or into buildings. I have been living in an old well taken care of car and mostly outside for over 4 years the pain is SO bad when I go inside. cfs, mcs people offered me a room but even in their places at best I would fall down with the worst case of the flu and couldnt move or (Im sure it was the paint on their walls) it would burn my nerves so I was screaming in pain.
  It seems to attack the nerves inside my nose first, then my whole face, head caves in, like knives, being stabbed in the head, then lights up all the other nerves in my body and Im screaming in pain. Sometimes it feels like a plastic bag over my brain. At other times like Im standing in a fire, all my tissue is being burnt. HELP!
  Food allergies as a child undiagnosed and untreated. Had never heard of anything like food allergies & had disinterested parents. Im 49. 17 yrs ago contacted ross river, glandular fever, barvon forest, kept on working, pushed on through, I dont get sick but the pain was unbearable. Took 10 yrs for fibromyalgia diagnosis, the key then was seratonin so trialled all the antidepressants. Of course, only 1/2 tab would cripple me in pain for days. Used to be locked up, muscles like concrete, physio at the pain clinic said I had the worst bound up thorasic shed ever seen but life got much worse when the chemical sensitivities kicked in 5 years ago. Cant understand how dumb I am for not recognising how much worse the pain was when I ate.
  Ive tried different diets, supplements, herbs, fms drugs, my hormone count is nil so to supplement hormones – everything made me ILL!!! as ill as ill as you could ever feel THE PAIN! Anything that passes by my lips, it seems like all food and inhalants….
  Hair analysis says ca, mg, most metals poisoning my tissues, sulfur, zinc, c, e, efas deficient, anemic due to cu poisoning. Blood levels show high lead, ca. Brain scan shows very advanced calcium blocked arteries & depression of course & small aneurism.
  I have a lot of trouble breathing but its the smell of everything…. if it blocks my nose and caves in my head then Im in real trouble. The fatigue is unbearable and indescribable but of course I cant sleep because of the pain. Theres not much I can eat.
  My adrenals have failed. I dont make any cortisol. My thyroid is sluggish but not bad enough to need any medication. Blood tests show first signs of kidney problems.
  Paper makes me ill. Of course, electricity makes me ill, mobile phones, computers.
  I cant study your web page because of the electricity. Im in more pain and lose any ability to comprehend anything.
  My doctor is suggesting brain inflammation is responsible for the wrong gating information about all the smells etc and pushing me to take lyrica to slow down the nerve impulses. I can take vitamins but most herbs and most drugs – SICK SICK.
  On dark I crash – been happening for nearly a decade and is the thing that will finally push me over the edge. Know one would live for this happening to them everynight on dark. Blood pressure, body temp drops, asthma, feel like Im in a coma except pain x 10, ringing ears. Feels like body wants to sleep but who could sleep in that much pain. Cant sleep for the night at 5 pm when Im in a car and people are still walking around. I thought the cortisol might have been the reason. I could only find 1 ex a bit similar on the net and they blamed low seratonin levels for it. I cant take 5 htp, trytophan or antidepressants without a SEVERE reaction. So cant raise them that way. Cant raise them through having fun. I cant get the pain down, Im sitting in a car, Im alone 7000 days now. Thats not going to raise my seratonin levels. My progesterone, testerone, estrogen are all nil. Those creams dont work.
  With all the detoxing Ive done (3 yrs) lead & cadmium have come down & even the cu which is still off the chart but ca, mg in the tissues is still just as high
  Blood analysis shows all cells damaged, clumping together, not much candida, lots of viruses etc.
  Taken heaps of stuff to kill it off – antibiotics (& probiotics) – because I had a bladder infection in the car everyday for a year, who needs that pain on top of all the other?, clove oil, citric acid.

  Sorry this is long. This is my last chance. I cant do anymore. I hit 50 soon and Ive only known torture. Its my turn. On the radio sick of listening to people with cancer – what a breeze compared to this.

  thank you for any help you can give. I do need a bit of tlc and faith in the human race. Ive been a good person – dont know what I must have done in my last life.
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  earthwalker

  October 31, 2010 at 11:30 pm

  Hi Debra,
  My heart goes out to you and I will respond privately to your email. x Julie
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  debra

  November 2, 2010 at 11:56 pm

  thank you so much for your reply. On the page for chemical sensitivity – where do you get a mask like that? I would like something like that with filtered air. I dont know what to focus on most. Avoidance is a necessity but cant stay couped up in a bubble (this car) forever. I just must be poisoned – extreme copper toxicity comes up, always a long list of viruses. Or do you really believe the brain gets stuck in the on position? This is aquired brain injury if you like. Just these 3 out of 00s of theories will require quite different treatments. Of course, most of us with cfs, fms, mcs struggle with what treatment to pursue or get so sick of it we stop completely.
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  earthwalker

  November 3, 2010 at 1:30 am

  Hi Debra,
  That photo you refer to is a stock photo so I don’t know what mask it is. But we have several discussions on the Planet Thrive forum about masks. Please do a search for “masks” in the forum area of our site. If you suffer from chemical sensitivity, I do think avoidance is necessary, and it’s the top treatment recommendation from many environmental medicine specialists. If you think you have an acquired toxic brain injury, I would encourage the brain retraining exercises as part of your healing toolbox. You can also simultaneously try reducing your toxic load by taking antivirals, addressing dietary issues, incorporating detox practices, etc. But it is a careful dance since detoxing can push us over the edge and cause serious symptoms if we are not careful, so a knowledgeable doctor’s supervision is advised.

  If you are looking for natural antivirals, I know of two off the top of my head: L-lysine, an amino acid, and Monolaurin, a coconut oil derivative. But you may need something stronger, ask your doctor. Certain foods that are higher in the amino acid arginine – like nuts and chocolate – will feed viruses so you want to avoid them.

  I encourage you to keep posting to the forum, as there are many super knowledgable people active on our discussion board who are very helpful to those who post there. Ask all these questions there. I am very busy and may not see your comment right away, and I am also just one person, and I don’t have direct personal experience with some of your symtoms. It would be good for you to get a wider range of responses, especially from those who share some of your diagnoses. Hope to see you on the forum! Best, Julie

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