I’m a breast cancer patient experiencing double vision for the past 3 1/2 months. I was finally diagnosed with a 6th Cranial Nerve Palsy. My doctors have ruled out a breast cancer metastasis to the bones/brain and EVERYTHING under the sun, except for lyme disease. I am not currently in treatment for lyme disease, but I was treated for it with doxycycline and levaquin (co-infected with mycoplasma and bartonella) over the course of two years. My last bloodwork showed a low CD57 and myco was positive again. It has appeared to become antibiotic resistant. My questions to you are: 1) Could lyme disease cause a 6th cranial nerve palsy? 2) What should I do for treatment? My doctors have told me that there is no treatment for it, and it should get better in a year. However, it has grew worse. My prism level jumped from a 2 to 4 in just 7 weeks. Thanks for your time.
Both mycoplasma and bartonella can cause cranial nerve palsy. In fact it is somewhat common in mycoplasma. The best treatment for that, that I know of, is to treat the mycoplasma AND to use herbs specific for the palsy. Here is where I would start:
• Cordyceps tincture, Chinese skullcap tincture, isatis tincture, houttuynia tincture ¼ tsp of EACH tincture in juice or water 3x daily
• Sida acuta tincture: 30 drops 3x daily
NOTES:
– You can mix all these together in the same liquid.
– Cordyceps tincture is, at present, hard to find, you can also use 2000 mg (capsules) 3x daily.
– Try elkmountianherbs.com for the Baikal (i.e. Chinese skullcap root tincture NOTE: do not use American skullcaps, they will not work for this)
– You can try woodlandessence.com for the other tinctures
– 1st Chinese herbs for the cordyceps capsules (Plum Flower brand) (Note from editor: If you click on the 1st Chinese Herbs ad below this post, you can get the code for 10% off this brand)
The cordyceps and the Chinese skullcap will help the palsy, however, what is very specific for it is:
• Kudzu root tincture; ¼ tsp 3x daily
• Lion’s mane tincture: ½ tsp 3x daily (http://www.beneficialbotanicals.com/products/v-TINC-TINCTURE_LM.html, as yet I cannot suggest any other brands BUT this one)
• And if you can find it: Chinese senega root tincture: 30 drops 3x daily FOR 30 DAYS ONLY, you might try elkmountainherbs.com for this as well.
This should take care of it within 90 days or so.
I wish to thank you from the bottom of my heart. Since posting this question (5 1/2 mos ago), my double vision grew nearly 50% worse. I can’t wait to follow your protocol, and report back to you. I’m so grateful to God for leading me to you, and for your help in showing me the way back…, because being on a “wait-and-see” program … just left in the dark … is not comforting or healing to the soul.
Peace & God bless you always,
Sonya Rose
When I received this protocol, I was a 9 in prisms. I’ve been following this full-heartedly everyday for the last three months. Sadly to report, my double vision has not improved. I was a 12 prism in both eyes during my last eye exam. It’s been a full year having double vision (sixth cranial nerve palsies).
Also, all tests are good. I had 3 Brain MRIs and 1 MRI of the shoulder – all clear of a breast cancer metastasis.
I haven’t received my Lyme test back from Advanced Laboratory Services. It’s been 2 1/2 months since sending my blood away.
It is to my understanding that it could take 4 months for the results to come back. I was positive in the past, so I just wait… I’m pretty sure that I still have it, but my doctor needs ammunition against the medical board.
After I stopped my Lyme disease treatment back in April 2012 (antibiotic protocol), the double vision slowly began… Also, I got so sick, developed lots of tiny red pinpoints around my eyes, face… discovered online it’s a condition called “petechiae”.
I developed, too, a strange rash on my leg, around my ankle. That took forever to heal and has left behind a scar… that sort of resembled Morgellons, but without those fibers.
Back in June 2006, I went to the ER with a big bizarre rash on my thigh. The doctor said that it was just an allergic reaction to a spider bite, gave me some cream, and two Tylenol. He said that it would go away. It did, but I grew sicker and sicker…. eventually, diagnosed with invasive breast cancer.
I’ll continue your protocol because I really don’t know what else to do at this point. Anything else to add to it?
I have not been treated by any of my doctors since my double vision began. I’m on my own here……. crawling through a tiny hole….
I have recently ordered your book, “Healing Lyme Disease Coinfections: Complementary and Holistic Treatments for Bartonella and Mycoplasma.”
I really look forward to it! I read a lot slower today, but all the better for things to deeply sink in.
In Peace and Good Health,
Sonya Rose
Great news!!! Latest update: Well, besides my recent PET/CT showing no breast cancer recurrence or metastasis, my double vision has FINALLY reversed itself in the good direction!!!
After 13 months, my prism level went from a 12 to a prism 10. All I added in addition to your protocol was: Haritaki.
My doctor today said that he doesn’t think that I have Lyme disease (anymore) … More on the lines of Chronic Fatigue Syndrome and told me to add: ATP Fuel, Artemisia, and Curcumin to my daily regime.
I have always tested high for Mycoplasma Pneumonia, but for the very first time today (in the past 3 years), my CD57 levels were out of the low range, and at the low end of normal.
Thank you for introducing me to this new magical world of healing! It really works, but one really needs patience.
Can’t thank you enough!
Sonya Rose
I don’t know what happened… This is a very complex disease. My CD57 levels fell low again… I jumped to a prism 15 in mid-summer and even that number is no longer accurate, possibly in the prism 20 range.
It’s been an extremely hot summer. Many days close to a 100 degrees.
This is a 17-month long battle now of severe, chronic double vision, dizziness, tinnitus, etc.
I was led to believe this appears largely like a Paraneoplastic Syndrome, but it is not (acc. to Mayo Clinic).
A new doctor is treating me with 3 different antibiotics. I hope to take to it. I hope it kills off the harmful bacteria. I will still continue with your healing protocol and report back again. Maybe, this combo will be the Holy Grail…
Sonya,
Have you tried acupuncture at all for your double vision? I experienced double vision in Dec 2011, while on vacation in New Mexico. After getting home to Kansas, and having an overnight stay in a hospital, I visited my acupuncturist. After three visits, my double vision improved, but not completely corrected. After a while, it finally cleared on its own.
My acupuncturist has also helped me with other neurological issues as well, so if you haven’t tried it, I highly recommend it!
Julie
Thank you very much, Julie, for that recommendation. I took your advice and went to see an acupuncturist experienced in moxibustion (direct scarring). I already had six treatments and although, no change to my double vision yet, the edema in my left arm has gone down. (My left arm was bigger than my right, side of my breast cancer where it spread to the lymph nodes.)
My acupuncturist says that he believes my eye condition is connected to my liver (something to do with the function of; deficient blood flow to the eyes/muscle), and my ear ringing – the kidneys. My liver and other organs – I’m sure has taken a hard hit after all that chemotherapy, hormone treatments (Lupron), surgeries/pain medicines, etc. I have quit all western medicine now, even antibiotics. I wasn’t sure if it was really working or not… and I hear those, too, can hurt the liver.
Before chemo, on a scan, my liver was unremarkable. The last scan showed a 6mm cyst. They said it wasn’t cancer, but not a good sign to me. So, this is where I’m focused..
I will say this… I have a lot more to read in your latest book, Stephen; but that Cordyceps is really a special one. I get these blurry spells … so difficult to read sometimes … and for some reason after taking Cordyceps, my vision is sharp as a tack, double, but sharp!
Thanks, again, I will keep you posted on my progress. My double vision has been ongoing now for over a year and a half. I’ll do my best to wake up the healer in me!
Just a recent update: My oncologist said that all my bloodwork is good, incl. liver and function panels – No connection to my eyes or ears.
So, I returned to my new family doctor and he put me back on the horse again. (I had quit all the antibiotics during my acupuncture treatments and that was the wrong thing to do).
I went further this time into the antibiotic protocol – 5 weeks on it so far, and I have recently seen an entire stretch-out arm (length) as one image on 3 separate occasions. First 2x, it was 7 days apart. Now, it’s about 4 days… I hope to see more and more like this, and then, further and further out.
This is quite a miracle to me; as typically, I can only see one hand as one image before me, and sometimes, it’s even blurry. Just really frustrating if anything seeing double all the time, so is the constant ear-ringing~
The medicine combo (western and eastern) must be working, but very slowly.
Also, I would like to mention that I received the sad news of my former family doctor (who successfully treated me the first 2x and rid me of that painful Rheumatoid Arthritis) had reluctantly discontinued practicing medicine. Since, I’ve known him – He’s closed 2 offices; now this is the 3rd and final.
Your books are beside my bed like the Bible, and I will not give up this fight. By this spring, it will be two years ~ where I needed a new eye prism every month. My last prism level jumped to 18. Seems to be some light at the end of the tunnel…
Here’s a healthy and happy New Year!
Today, I received wonderful news from my eye doctor. Just two months into my antibiotic therapy combined with yours, there was an improvement of movement to 85% from 70%. Also, my prism deviation improved from 18 (esotropia) to 14. This is amazing! I’m so happy. At this rate, I could heal by this summer or definitely this year from an almost 2 year long battle of double vision and ear ringing caused by Chronic Lyme Disease. It’s unbelievable the journey…. Thank you.
Sonya,
I just wanted to say that I read your writings here and followed your many years journey and I am really moved by how intense it has been. I also have esotropia and a history of Lyme – as well as left sided facial numbness, auditory hyperacusis and many other issues of peripheral neuropathies. Anyways, thank you for sharing, and I wish you abundant good health.
Peace,
FM
Sonya,
any update on your condition? my son has Bartonella & Mycoplasma he has double vision
Mark,
I’m wondering if there is a way to contact you. I also have a son diagnosed with lyme and double vision for a year
How are you doing now Sonja?9