Dear Stephen,
I have heard great things about you and was wondering if you could help me with a protocol for FL1953?? It’s horrible – I’ve been sick in bed over 4 years now. FL1953 is a new, unique protozoan organism that is found in people with CFS, fibromyalgia, multiple sclerosis, ALS, and rheumatoid arthritis. People with Morgellon’s also have evidence of the organism.
I have heard great things about you and was wondering if you could help me with a protocol for FL1953?? It’s horrible – I’ve been sick in bed over 4 years now. FL1953 is a new, unique protozoan organism that is found in people with CFS, fibromyalgia, multiple sclerosis, ALS, and rheumatoid arthritis. People with Morgellon’s also have evidence of the organism.
Stephen’s response:
I am sorry to say that although I have researched this organism extensively, I can find nothing on it in the literature; nearly all is from the work of one person, Stephen Fry, who has also begun to file patents around the organism. I tend to get twitchy when this sort of thing happens. It has been 4 or more years since he began talking about the organism, nevertheless, NO ONE in the scientific world has done any work on it, nor is there anything in the journal literature. My skepticism increases. This does not mean that such an organism does not exist, it is just that I hear of things like this all the time and many of them turn out to have no foundation. That being said, the organism is reputed to be similar to both babesia and the malarial parasite. You can use the babesia protocol (in the babesia book) for treatment. There are also a number of people on the internet who detail their road back to health.
I am sorry to say that although I have researched this organism extensively, I can find nothing on it in the literature; nearly all is from the work of one person, Stephen Fry, who has also begun to file patents around the organism. I tend to get twitchy when this sort of thing happens. It has been 4 or more years since he began talking about the organism, nevertheless, NO ONE in the scientific world has done any work on it, nor is there anything in the journal literature. My skepticism increases. This does not mean that such an organism does not exist, it is just that I hear of things like this all the time and many of them turn out to have no foundation. That being said, the organism is reputed to be similar to both babesia and the malarial parasite. You can use the babesia protocol (in the babesia book) for treatment. There are also a number of people on the internet who detail their road back to health.
Stephen
Hello
I took the Fry labs test six years ago. It uses a fluorescent DNA dye approach so it is simple and highly accurate. Live blood is used and with the dye, if the blood sample glows when you hit it with a fluorescent light, you are definitely positive.
Dr. Bowen, now deceased, had the same type of test for Borellia. Very simple and accurate. But of course, she was accused of having too many false positives. Dr. Lida Mattman (author of Cell Wall Deficient Forms – Stealth Pathogens) worked with her and she was able to regrow spirochetes from the blood samples of patients that were sent to Dr. Bowen. She did this for over 400 patients.
FL 1953 is like a cross between a worm and an amoeba. It comes in a couple of different strains. It is also tick borne. It is a slow grower, so it creeps up on you. I can both detect it and kill it. I have found many people who are positive for both Borellia and FL 1953. These organisms are both prolific biofilm generates. What happens is that your blood turns to syrup. For example, you will need to knock down your Fibrinogen levels.
What we have found is that the Tau protein tangles in the brains of Alzheimer patients are due to FL 1953. Just like Stephen, I am wary because of the financial aspects with Fry. But I am also wary of the drug companies who seem to be trying to get to a blockbuster drug for Alzheimer’s but my understanding is that they are going after the symptom (proteins) versus the cause (FL 1953). So they are probably even more financially “mis-motivated” than Fry.
Jon, besides knocking down fibrinogen, do you know of any treatments? Thanks.
It turns out that this organism is actually a fungus called Funelliformis mossaea. Fry’s paper about it was just published this year (2017).
Has anyone made any connections to what is being called Morgellons and the parasites mentioned here of various sorts, and are there any herbs to counteract it?
How is one tested for FL1953? I’m awaiting a stool full parasitology report/analysis from my Naturopath due to my Lyme like symptoms, achey muscles/joints intermittent twitches in mostly in elbows, calves, ankles but sometimes my back/temple area as well but not loss of mass or strength. My first ARUP lab Lyme showed negative but yet to see any numbers saying so just saying negative IGG and negative IGM. Any insight appreciated.
I used to have Protomyxoa (FL1953), and my doc here in MD put me on Ivermectin, and that seems to have done the trick. This was back in 2011-12 I believe. We did still occasionally find some biofilm blobs in my blood but we were never able to determine what was causing it.
Bill S, what dosage of ivermectine did you take and for how long?
can you share the dosage, thanks
Bill, I hope you see this as others have also asked and I would like to know for myself and my daughter. What dose of Ivermectin did you take? What was the exact protocol used? For how long? Thanks