A CFS/ME Phoenix Guide to RNase L
RNase L is an enzyme found in all cells that is activated when a cell is under attack by viruses, some bacteria and at least some toxins. In most CFS patients thus far studied the RNase L enzyme is broken up into pieces. An RNase L fragment commonly seen in CFS patients is the closest thing to a biomarker yet found for this disease.
The Hummingbirds’ Foundation for ME
Fighting for recognition of ME, and for patients to be accorded the same basic human rights as those with similar disabling and potentially fatal neurological diseases such as MS.
CDC’s CFIDS webpage
The CDC’s (Center for Disease Control) materials site on CFIDS.
CFIDS Association of America
Working to conquer Chronic Fatigue and Immune Dysfunction Syndrome. 704.365.2343
Chronic Neuroimmune Diseases
Melissa Kaplan’s informative site on CFS, FM, MCS, Lyme Disease, Thyroid, and more
Website of Dr. Ritchie Shoemaker, with online VCS (Visual Contrast Sensitivity) tests and information on his groundbreaking treatment of biotoxin-related illnesses—anyone with CFS or FMS should read his article on Fibromyalgia.
ME/CFS and Fibromyalgia Information Exchange Forum—has a comprehensive “good doctor” list, message board, research updates, articles, reading room, and more.
The Committee for Justice and Recognition of Myalgic Encephalomyelitis
An international patient-based association dedicated to promoting justice for the victims of myalgic encephalomyelitis, and dedicated to achieve the full public recognition of the dangers of this worldwide disease epidemic.
Definition for ME/CFS
The Canadian Expert Consensus Panel has published a medical milestone, the first clinical case definition for the disease known as myalgic encephalomyelitis/chronic fatigue syndrome. This definition is clearly a vast improvement over the CDC’s 1994 case definition for CFS.
Dr. Cheney’s ME/CFS work
Interviews, articles, and other links to the work of CFS pioneer Dr. Paul Cheney on the Dallas/Fort Worth CFIDS website.
Dr. Teitelbaum’s CFS website
Comprehensive website of Dr. Jacob Teitelbaum, director of the Annapolis Center for Effective CFS/Fibromyalgia Therapies, acclaimed author, and former FMS patient. 410.573.5389
Fibro/CFS Foothold: A Million Stories Untold
Wonderful essay on living with CFS/ME by Jodi Bassett.
Fibromyalgia Coalition International
FCI’s mission is to give hope to everyone suffering with Fibromyalgia and Chronic Fatigue Syndrome through extensive research and reporting of natural, proven and effective therapies that focus on the root causes. 913.384.4673
Specialist Dr. Daniel C. Dantini is a Fibromyalgia Specialist. 70% of the people he treats for fibromyalgia (FMS) and chronic fatigue syndrome (CFS) have stealth viral infections, which can live silently in the body for years until the viruses are triggered. If your immune system isn’t able to suppress the viruses, your symptoms will continue and most likely get worse. He treats the cause of fibromyalgia (FMS) and chronic fatigue syndrome (CFS) and not just the symptoms. He has successfully treated thousands of patients over the years through viral management, diet and limited exercise. 386.671.7699
Gupta Amygdala Retraining™
Ashok Gupta offers a DVD program, as well as in-person treatments, to help retrain the brain and calm the hyperaroused amygdala—the brain’s fight or flight center of fear and anxiety. His program treats Chronic Fatigue Syndrome (CFS), as well as related conditions of Post-Traumatic Stress Disorder (PTSD), Fibromyalgia (FM), and Multiple Chemical Sensitivity (MCS).
Health and Environment Resource Center
Message boards, articles, books and other resources for anyone suffering from chronic health issues and wanting to learn more about the effect the environment has on our health.
Interview with Dr. John Chia, M.D. Part I by Cort Johnson (8/08)
Interview (part I) with infectious disease specialist, Dr. John Chia whose son has ME.
Interview with Dr. John Chia, M.D. Part II by Cort Johnson (8/08)
Interview (part II) with infectious disease specialist, Dr. John Chia whose son has ME.
Blog by a guy named Kurt, about his search for a holistic protocol to treat Chronic Fatigue Syndrome with Lyme Disease—with a focus on the various versions of the salt/vitamin C protocol.
Protocol for Th1 Inflammatory diseases—characterized by the generation of Interferon-gamma and with it, 1,25-dihydroxyvitamin-D in response to cellular bacteria—being used in the treatment of CFS/CFIDS/ME, FMS, Chronic Lyme, Rheumatoid Arthritis, Lupus, Psoriatic Arthritis, Ankylosing Spondylitis, Crohn’s Disease, Parkinsons, ALS, and other inflammatory conditions.
ME Action UK
Site run by Stephen Ralph, contains links to many excellent M.E. activism articles and more.
Danish site that offers a description of the disease and its symptoms, practical advice on how to live with ME on a day-to-day basis, national and international news, recent research, and a list of references.
ME Society of America (MESA)
MESA is an organization that seeks to promote understanding of the disease known as myalgic encephalomyelitis (ME/CFS), a multi-system disease adversely affecting the cellular mitochondria and the heart, brain, neuroendocrine, immune, and circulatory systems.
A running list of ME-related deaths on the www.hfme.org website.
Natural Solutions for CFS/FMS
After suffering with Fibromyalgia and ME/CFS for 13 years, Yvonne Keeny recovered primarily by following a program of nutrition combined with other alternative treatments.
Site of Dr. Dietrich Klinghardt, M.D., with his protocols for heavy metal poisoning, Lyme Disease, and other neurotoxins. 425.637.9339
New Theory on Mystery Illnesses Part I
New Theory Links Neurotoxins with Chronic Fatigue Syndrome, Lyme Disease, MCS, and other Mystery Illnesses Part I: summary of Shoemaker and Hudnell’s theory on biotoxin illness.
New Theory on Mystery Illnesses Part II
Part II of the summary of Shoemaker and Hudnell’s theory on biotoxin illness.
Nightingale Research Foundation
A Canadian registered charitable organization dedicated to the study and treatment of Myalgic Encephalomyelitis (M.E.) and Chronic Fatigue Syndrome (CFS) and related illnesses.
The Pall Protocol for Treating Fibromyalgia & CFS
Good synopsis of Pall’s complicated theory, written by Adrienne Dellwo on About.com.
ProHealth – Chronic Fatigue / ME
Excellent source of articles, latest research, and support for chronic fatigue syndrome and myalgic encephalomyelitis.
Independent campaigning effort for Research Into Myalgic Encephalomyelitis (RiME), borne out of a dissatisfaction with the national ME charities over the last decade.
Rnase-L Enzyme Dysfunction (RED)
One Answer to the mysterious disease syndrome variously known as M.E. (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome), or CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome) may be found in a newly discovered condition called The Rnase-L Defect.
Gordon D McHendry’s excellent site with lots of useful articles about M.E. and related conditions.
Share, Care and Prayer, Inc.
Nonprofit, Christian organization encouraging, educating and equipping the environmentally sensitive (sensitive to foods, chemicals, molds, and other inhalants) as well as those suffering from Candidiasis, Chronic Fatigue Syndrome, and Fibromyalgia—services offered include a lending library, social directory, tapes, and Circle of Prayer Day.
In his 30 years of clinical experience, and in his landmark study on Effective Treatment of CFS/FM, Dr. Jacob Teitelbaum has found that his SHINE approach to treating CFS/FM is successful in the vast majority of patients. SHINE represents five areas of health issues that need to be addressed when creating a treatment program: sleep, hormones, infections, nutritional supplements, and exercise. 410.573.5389
Surgery, Anesthesia and CFS / FM / MCS
Melissa Kaplan’s helpful compilation of information regarding the hospital experience for those suffering from CFS, FM, and MCS
Teenager Makes Scientific Breakthrough
A teenager has discovered and confirmed a bio-marker for chronic fatigue syndrome (CFS), fibromyalgia (FM) and multiple chemical sensitivities/environmental illness (MCS/EI). The discovery is a medical breakthrough.
The Tenth Paradigm
Martin L. Pall, PhD’s website that offers a detailed explanation of his NO/ONOO theory on a common causal (etiologic) mechanism for Chronic Fatigue Syndrome, Myalgic Encephalomyelitis, Multiple Chemical Sensitivity, Fibromyalgia and Post-Traumatic Stress Disorder.
The Tenth Paradigm Society
The mission of the Tenth Paradigm Society is to gain recognition and acceptance for a tenth new major theory (or paradigm) of human disease, which explains previously unexplained multisystem illnesses and to conquer these illnesses which include: Chronic Fatigue Syndrome (CFS or CFIDS), Multiple Chemical Sensitivity (MCS), Fibromyalgia (FM), Post Traumatic Stress Disorder (PTSD), and Gulf War Syndrome (GWS).
The 25 % M.E. Group
There are approximately 200,000 people in the UK who suffer from M.E. Some do recover. However, approximately 25% of sufferers remain long term ill and severely disabled by the disease. Many are left isolated, housebound or even bedbound by the effects of the illness. It affects people from all walks of life, all age groups and can strike when you are least expecting it. The 25% M.E. Group exists to support all who have the severe form of M.E. and those who care for them. This includes people who are housebound, bedbound and wheelchair users.
Understanding Chemical Intolerance
Information concerning Chemical Intolerance, Chronic Fatigue Syndrome, and Gulf War Illness, by Don Richard Paladin.
Virus Induced CNS Dysfunction
Virus Induced CNS Dysfunction describes the subset of Chronic Fatigue syndrome (CFS) patients who have elevated HHV-6 and EBV titers and clinical symptoms of a viral syndrome with neurocognitive complaints and sustained fatigue. Other viruses may also play a role in defining CFS patient subsets. This site has information on testing, clinical trials of Vancyte for CFS conducted at Stanford University, and other resources.